Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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As someone with chronic fatigue due to long covid i can relate to this hard. I only had to wait 2 years to start with some experimental meds tho so not all is bad.
Chronic Fatigue ≠ ME/CFS [Hallmark symptom of ME/CFS is PEM]
So sorry to hear you got post-COVID tho. Hope your baseline improves.
Yeah I mean...fatigue sucks. Like, as a symptom caused by the flu or sth. Chronic fatigue has to suck even more, like any acute illness that becomes chronic. And I yes, there is Post Covid type ME/CFS than also goes along with chronic fatigue as well as PME (and other debilitating symptoms such as severe pain etc.,). So not just PME. At least this is the way our specialist frames it/ named it. But maybe there is a translation issue/ language barrier, no native speaker here. Luckily I am just blessed with some rather annoying but mostly livable chronic diseases...but it hit my significant other, so that's why I asked in the first place about the medication, hoping for some hints about possible options...thank you for your well wishing :-)