Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I have a tongue issues which five different doctors have decided is geographic tongue, and told me it will go away “in a couple of weeks”. The last two times I heavily prefaced adding “Before I get into it, it’s OK to say you don’t know, but don’t tell me it will go away in a couple of weeks because it’s been over ten years.” Both times as soon as they saw my tongue they cut me off with a “it will go away in a couple of weeks” and refused to discuss it further.
That's usually related to vitamin deficiencies, have you been screened for that at all? Doctors tend to skip over vitamin deficiencies
I’ll ask the next one!
I'm sorry, are you saying they haven't brought it up before? Maybe do some of your own research and try supplementing the vitamins listed or eating foods with thise vitamins in them. My word, it's like a classic symptom of B3 deficiency among others, I'm so sorry no one has told you. It's literally the first thing they are supposed to give you, are vitamins, to treat that and see how it responds.