Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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When I got sick it took me a month to realise I might have had what my grandma had. That got scary for a moment because her tests were always normal and my whole family, myself included, thought she was a druggie. I got dead set on getting to the bottom of it and therefore got diagnosed in likely a record time despite being seronegative.
If you want to put a cherry on top then you can add referral to a psychologist in the last panel XD
I got told to drink warm milk before bed as a response to fatigue, unbalance, and dizziness. That was a great $35.
They didn't even run a test and told me to drink Gatorade
Psychologists and physical therapists are the favorite referrals of doctors who essentially tell you “it’s your fault and/or you’re making it up.” Glad you got Dx’d quickly though!
I went through diagnoses of burnout, anxiety, FND, health anxiety, depression, before I finally met a doctor who did the right tests and diagnosed my illness.
The medical system has an obsession with psychologising illnesses they can’t explain. it’s scary.
The paradigm is, meke them do therapy and exercise, and everything will magically get better. Which, well when you have an underlying undiagnosed medical condition, just isn’t the case.