Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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If it's any comfort reading about you getting meds but only suffering side-effects, gave me some comfort in that I can't even get an appointment. Like I might not get any help, but at least I don't get meds that make it worse.
Also I completely agree with you on what dose it matter if it is addictive. My grandmother got a medicine that worked grate on her dementia, but the next doctor (they hospital hade like short hired doctors on rotation) took it away because it is really addictive. She never got a medicine that worked well after that, had she stayed on the addictive one she most likely would have gotten 5-10 good years more, but you know addiction.
Thanks. Glad no naughty side effects for you. They are not fun.
It was the beginning of my pain odyssey and was ignorant. I took what they gave me and I systematically ended them all and then settled into my own regime. I am beyond lucky, I got in with this doctor 15yrs ago before things got really bad getting a good doctor. Hopefully he outlives me ;-)
I feel for you about your grandmother. I watched my mom languish for 5 years in a home asking for them to end her. This was before MAID (Medical Assistance in Dying) was available. Our pets are treated with more dignity. I know when it starts getting worse with me I am not going to languish.