this post was submitted on 21 Jun 2025
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Public Health
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The newborns lose genetic privacy at the start of their lives and we're one step closer to the dystopia of Gattaca. Next up: designer babies courtesy of CRISPR.
That sounds overly dramatic. On the other hand, the article doesn't give clear information on health data processing nor does it address privacy.
There are reasonable way to implement it, such as treating this a sensitive health information, requiring informed consent of a parent to add a genome in a database (even anonymously), not giving the government control nor full access, just statisitical information.