this post was submitted on 11 Apr 2026
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[–] andxz@lemmy.world 9 points 3 days ago

The problem with that is there are doctors with individual opinions gatekeeping that welfare. One might think you're disabled, while another might think you can get better. I've been stuck in just that kind of limbo for almost a decade. I'm required to look for a job each month that everyone involved knows I could never do, and so I have to live on the bare minimum until I reach some arbitrary threshold to get the pension I should've gotten a long time ago.

Meanwhile my family suffers, I have to spend what little I get on the medicine keeping me breathing and when I finally get it I'll be too far gone to have any time left.

All this because I happened to get a disease rare enough that there are no experts and it just so happens to interact with the asthma I already had in unpredictable ways.

So tell me, who should decide who's disabled and who isn't?