Disability and Accessibility

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Seeking advice - how to do less when you're already doing very little (beehaw.org)

submitted 2 years ago by emma@beehaw.org to c/disability@beehaw.org

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Neuro rehab has gone in for pacing advice before other help. I've been chronically ill since early childhood and understand pacing. The OT heard the variety of things I do to get through the exhausting quantity of hours in a day and went straight to Look at how MUCH you're doing without understanding that 1) the variety is trying to use different parts of my thinking (roughly words v not words) and 2) even if I do less, there are still 16 hours to get through every single bloody day.

Trying to use this as a time to re-evaluate what I am doing to fill the hours but there's only so much lay in bed quietly with my eyes closed I can do without further damaging my mental health.

I don't know if there is an answer to this. I used to be really good at reframing and thinking outside the box and I've been doing this for decades, but may as well throw this out here to see if anyone's come up with any other ways to get through the days.

My spoons are crap because of the effort of going to the neuro rehab appt so will read replies but responding to them might not work so well. You know how that goes....

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[–] elfpie@beehaw.org 3 points 2 years ago (1 children)

Variety is good for your brain, but it will overwhelm you after a while. You get used to it and a blind spot appears. With the information I have, I'd suggest planning your day around one activity. Be on theme.

You start your day with a goal and imagine how you can achieve it. The planning is one activity by the way. You plan for house long you will do any given thing continuously and where the pauses will be. One hour and then fifteen minutes rest? After a pause, you can reflect upon the subject, write about it, see if you haven't stayed off course, basically process, rinse and repeat.

It's weird being this generic,, unfortunately I see no other way.