LillyPip

joined 2 years ago
MODERATOR OF
[–] LillyPip@lemmy.ca 2 points 1 week ago (5 children)

Thanks so much! I’d love to know what you think if you read it. Let me know if you’d like me to read something, too!

[–] LillyPip@lemmy.ca 2 points 1 week ago

I’m so sorry. You shouldn’t be facing these cuts on top of everything else. I hope you can find some relief soon.

[–] LillyPip@lemmy.ca 2 points 1 week ago

John Kellogg, known for cork flakes, calamari, and an unhealthy obsession with children’s junk.

[–] LillyPip@lemmy.ca 19 points 1 week ago* (last edited 1 week ago)

Thank you. There are a LOT of people like me, and many of them are children.

I want you to know me because people are more likely to fight for friends rather than strangers. Please understand that I am trying to manipulate you, and I’m really hoping you’ll manipulate others this same way. A lot of people are about to die, and some are already dying.

Please find and share their names and stories, and get others to do the same.

We need to be honest with each other.

[–] LillyPip@lemmy.ca 20 points 1 week ago

I’m sorry. I wish you didn’t have to go through this. You don’t deserve that.

[–] LillyPip@lemmy.ca 17 points 1 week ago* (last edited 1 week ago) (2 children)

I’m happy to share my story with anyone.

I have a combination of rheumatological and genetic issues, including RA, Sjögren’s, Ehlers Danlos, severe osteoporosis, and a couple of related issues that have caused severe GI and heart issues. I can’t digest fruits or vegetables (they come out looking exactly how they went in) so my diet is severely limited, and I have seizures.

The drugs they’re saying I can’t have anymore include hydroxychloroquine, pilocarpine, prolia, and a few drugs meant to make my life more livable (tizanadin, gabapentin, mirtazapine, and ondansetron).

e: I can’t travel because of the seizures and that being out and about exacerbates my heart condition (SVT and periodic sinus arrest – I have a loop monitor).

I don’t take any opioids or anything like that, only things to keep GI cramps in check so I can at least eat a bit, plus metoprolol er and more paracetamol than is safe, because nobody is willing to even attempt to manage my pain at this point. I’m better at that through means that won’t ruin me physically or psychologically since I’ve had to for my entire life, since I was too small to have choices.

e2: Let me know if you want to know anything else. (edited to be a bit more specific)

[–] LillyPip@lemmy.ca 7 points 1 week ago (2 children)

I’ve honestly wondered whether circumcision dulls boys’ empathy?

If the first experience you have in the world is extreme pain in your most vulnerable place, what does that teach you?

[–] LillyPip@lemmy.ca 44 points 1 week ago

Thanks. I appreciate that.

I’m not just talking about myself, but others like me. I’m Lilly Piper, but there are others like me. You can try to save all of us, and I would greatly appreciate your efforts.

[–] LillyPip@lemmy.ca 190 points 1 week ago* (last edited 1 week ago) (32 children)

Just so these dipshits know, I’m already feeling the cuts to Medicare/Medicaid staffing and services.

I live in the US and rely on Medicare because I’m fully disabled, to the point of being homebound.

Apparently the division that deals with remote visiting technology has been cut, so they can’t legally fill my prescriptions anymore unless I physically travel nearly an hour to their office every 3 months to remain eligible, and my doctor can’t legally renew medications that I’ve been on for 20 years. Within a couple of months I’ll have to stop taking all of my long term maintenance meds because I cannot travel to their office.

This will remove all my quality of life and will kill me slowly. I don’t want to die slowly of neglect, so I’ve got a decision to make, and I’m putting it off because I really don’t want to die yet.

I don’t know what to say except I have a name. I’m Lilly Piper. I’m a very good user experience designer, a pretty good writer, and decent friend.

We’re not faceless or nameless. I just want someone to remember that there are names behind these policies.

I’m good at sewing; I make period correct corsets from the 1800s and before (proof and more proof).

I’m actually great at sewing. I do embroidery and am a great listener. I’m also a good writer and editor. I didn’t need to die like this, but I won’t be homeless again, and I won’t beg in the streets for medicine. I just won’t.

e: links

[–] LillyPip@lemmy.ca 6 points 1 week ago* (last edited 1 week ago)

I wouldn’t change anything except the assumption in the overall medical field that infants can’t feel pain. I don’t know much more about this specific condition, but I have a different condition in which they assumed infants can’t feel pain, and they were wrong enough that I still have trauma from that.

Take any medical knowledge from 20+ years ago that sounds horribly painful with a grain of salt, because that was the assumption relatively recently. Some doctors who learnt medicine more than 20 years ago still think that.

e: Groundbreaking research in 2015 says babies do feel pain. 2015.

[–] LillyPip@lemmy.ca 11 points 1 week ago* (last edited 1 week ago) (6 children)

It’s not something that needs medical intervention, necessarily, because there’s nothing that can be done, and most live through it. Also, until shockingly recently, the medical field assumed (or maybe hoped?) infants can’t feel pain.

Turns out they can, though.

e: I can’t spell

 

cross-posted from: https://lemmy.ca/post/37369245

There are many reasons you might have unclaimed funds (abandoned accounts, uncashed checks, misspelled names, incorrect addresses, misplaced inheritance and trusts, etc), and your state is required to hold your property until you claim it.

They will not seek you out, and most people are completely unaware they may have lost funds or property being held by the state.

Every state has an official (.gov) website where you can check whether you have unclaimed property and submit a claim. Just search ‘[my state] unclaimed property’.

e: make sure you go to the official state website; I just noticed some state search top results aren’t the official (.gov) website.

e2: also, check every state you’ve lived in. Moving state is one of the major reasons this happens, and your unclaimed funds will not move to a new state with you.

e3: if you find unclaimed funds, please comment! I’m fascinated to know, no matter how large or small.

 

There are many reasons you might have unclaimed funds (abandoned accounts, uncashed checks, misspelled names, incorrect addresses, misplaced inheritance and trusts, etc), and your state is required to hold your property until you claim it.

They will not seek you out, and most people are completely unaware they may have lost funds or property being held by the state.

Every state has an official (.gov) website where you can check whether you have unclaimed property and submit a claim. Just search ‘[my state] unclaimed property’.

e: make sure you go to the official state website; I just noticed some state search top results aren’t the official (.gov) website.

e2: also, check every state you’ve lived in. Moving state is one of the major reasons this happens, and your unclaimed funds will not move to a new state with you.

e3: if you find unclaimed funds, please comment! I’m fascinated to know, no matter how large or small.

527
Escape (lemmy.ca)
 

You’re lucky – an overhead cubby and 3 drawers. Plenty of places to hide booze.

 

The basis for my theory:

If we developed warp drive, genetic manipulation, and transporter tech, I’d reckon even before that we’d first figure out how to make dogs live for hundreds of years. Because that’s easier and of course we would.

I’ve seen people post that it must have been like Porthos v9 because of the time difference, but there’s no way that dog didn’t outlive Archer by decades, because if we’re going to do anything good as a species, it will be making sure our dogs outlive us.

So Scotty lost the OG Porthos.

e: better phrasing

519
Excellent (lemmy.ca)
 
 
 

It’s just sight gag after sight gag. I kept waiting for it to get better, but it never did. It’s like a live-action Woody Woodpecker cartoon, which was fine when I was 7, but is shallow and boring now.

Why is everyone raving about it? What am I missing?

 

Reddit has so many bots, formulaic comments, and clear patterns (reposts, call-and-response, joke chains, & copypasta), that it seems useful to farm Lemmy for more unique comments performing well to steal.

I could see value of someone farming these comments because there’s far less of all that and people are actually creative much of the time. I don’t know if this would be more trouble than it’s worth, but got to wondering.

Is anyone doing this? Farming Lemmy for, especially, comments to post on Reddit to make themselves seem more authentic?

Do you know of this is plausible, or have you actually seen it happen?

Just to be very clear, I don’t want to do this. I abandoned all my other accounts during the Great Enshittification. But there are a few bot accounts that post a lot here, across several instances, focussing on reposting from Reddit and elsewhere. Is that what they’re trying to do?

 

Sorry for the long post.

I was committed to a trans man for 30 years (we got together in 1989). We couldn’t get married for most of that time because it was illegal, but we represented ourselves as married since about 1991, which tbh in some cases meant breaking the law on legal documents to try to get fair representation, so I wouldn’t be excluded from ‘married’ benefits in healthcare, housing, etc. Once he was able to ‘pass’ and we lived in a new state where people wouldn’t out him, he stayed in the closet, and almost nobody knew he was trans since the early 90s. We just wanted to live a normal life. The only people who really knew were our healthcare providers, because that was the only place it was an issue.  

We had a mostly happy marriage and raised a wonderful son – he’s 27 now – until about 15 years ago when my disability started getting really bad. I was born with Ehlers Danlos and an autoimmune disorder, which I was mostly able to compensate for until it started getting really bad in about 2010. I had built a career in software development and UX design, but I developed Dysautonomia and started having seizures, major heart issues, and GI intolerance to the point I couldn’t process food. I worked for a couple of years after that, but it became impossible and I had to give up the career I loved and go on disability. We were pretty well off – not rich, but comfortable – and my inability to work didn’t jeopardise our financial stability that much. Between the benefits of my career and his (he was a regional director in university housing), we had been doing okay.  

It took several years for me to be diagnosed, since what I have is extremely rare. It’s also degenerative, and there’s no treatment or cure. It only gets progressively worse. I’ve never liked sex, but I did it because he liked it. But the sicker I got, the more I just didn’t want it. It’s very hard to force yourself to have sex when you feel like you have the stomach flu 24 hours per day, 7 days per week, 365 days per year.  

He started getting annoyed with that, and angrier at the sex situation the sicker I got. At first, he’d leave pamphlets and books around the house with titles like ‘How to enjoy sex when you’re disabled’. It felt very passive-aggressive, and I started feeling resentful. Eventually it turned into him shouting at me in public, and I couldn’t take it anymore. Between my progressive disability, the constant pressure, and feeling increasingly alone and worthless, I became suicidal. I found myself holing up in the toilet, crying for hours, and just wishing it would end. I asked for a divorce. He was clearly deeply unhappy with me, and I loved him too much to do that to him. I still do.  

Partly because we’d only been legally married 4 years before that when it finally became legal (still not in my state; we travelled to a legal state to do it), even though we’d been representing ourselves as married for 30 years, and partly because my divorce lawyer basically snubbed me after he got my husband’s legal records – clearly because he didn’t approve of the relationship (he didn’t even show up for court and stopped returning my calls, but I couldn’t afford the retainer for a new lawyer), I was left with nothing. No alimony, no savings, no retirement because we’d cashed out mine in favour of his (yes, I was stupid, but he controlled the finances and I never thought our relationship would end), I was left with literally nothing but half the debt.  

My ex-husband was married again within a year of our divorce (to his high school sweetheart who he had kept contact with – their friendship never bothered me, because I am not a jealous type) and they make 6 figures. I now live on nothing but disability, am overdrawn every month, and have to choose between medicine and basic necessities. I’m supposed to drink ensure and pedialyte because of my digestive issues, but I can’t afford it.  

I’m homebound and completely alone now, and I have no social network because all of my friends and most of my family have died in the last few years. I’d kept my son away from my ex-husband’s family for his entire life because they are abusive, narcissistic sociopaths and I valued my son too much to expose him to that, but since the divorce, my son moved to be near his father and connected with them. They always hated me, partly because they blamed me for ‘enabling him to become trans’. They literally had said that. After a few months’ exposure to them, he visited me to have a short conversation in which he told me I’d always be his mother, but he didn’t want to be around me anymore. We’d always been very close with a great relationship, and this broke my heart. I don’t think I can recover from that.  

I don’t know what to do. I can no longer afford to live, and Medicare is wholly inadequate for my healthcare needs, but I can’t afford the gap insurance. My teeth all need pulled now since I can’t afford dental care, and all of them hurt (sjogrens syndrome rots my teeth). I can’t afford even Medicare’s copays. Every month, I am staring down homelessness, and the stress only makes my dysautonomia worse.  

I no longer have good days. A few years ago, I wrote a scifi novel, but I don’t feel well enough to promote it. I have no energy for social media, and that’s needed to sell books. I’m pretty good at writing and am working on another novel, but I’m so consumed with stress over finances that I can’t focus. I honestly feel that all of society right now just wants me to die.  

What’s worse, I feel like my inability to just conform and have sex is what led to this. If I had just been able to suck it up and do the deed, I’d not have lost my marriage, my husband, my son, and everything.

e: 15 yrs, not 10 – I’m bad at numbers

 
318
My hole (lemmy.ca)
 
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