malvidx

joined 2 years ago
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chronic pain and CRPS in c/disability@beehaw.org
[–] malvidx@lemmy.sdf.org 1 points 2 years ago

Thanks! I've let my physical therapist know what's going on and hopefully she can help!

chronic pain and CRPS in c/disability@beehaw.org
[–] malvidx@lemmy.sdf.org 1 points 2 years ago* (last edited 2 years ago)

Thanks! It really is. It feels (dare I say) validiating. I've spent so many years being told "we don't know" and one pain doctor even called me drug seeking. So I'm SO happy to start hopefully getting relief.

chronic pain and CRPS in c/disability@beehaw.org
[–] malvidx@lemmy.sdf.org 1 points 2 years ago* (last edited 2 years ago)

Thanks sorry it's taken me awhile to respond. Its been arough few days. I can relate a lot to your post. My doctors have all said structuraly you're fine we don't understand! I've been struggling to do anything except lay in bed. I have a home health aide that comes 10 hours a day 7 days a week so that's amazingly helpful. I hope you get some relief too.

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chronic pain and CRPS (lemmy.sdf.org)
 

I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

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is the community not active? (lemmy.sdf.org)
 

It says my approval is still pending and I'm not seeing new posts?

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anyone got a pain pump? (lemmy.sdf.org)
 

I was approved for a morphine pain pump. Went through the psych eval etc. I'm waiting to be scheduled for my trial. Has anyone had one and what's your experience? Thanks!

1
atticus (infosec.pub)