sappho

joined 4 years ago
[–] sappho@hexbear.net 38 points 11 months ago (1 children)

They made it so much worse. Essentially any person you encounter (the language says "occupant" of a public or private space iirc) can legally require you to remove your mask.

[–] sappho@hexbear.net 33 points 11 months ago (10 children)

It's really fascinating to me that this is what people make when the barrier to artistic creation disappears. It reminds me of some Youtuber books - they're written by people with no literary skill or experience, but they produce them because they've gotten popular enough that the books are a profitable endeavor regardless of quality. Until you read a Youtuber book you don't consciously realize what is necessary to write a book, because usually, mostly, only people who have that ineffable something do write novels. And here: you don't realize what is needed to actually create art and not just images, until you see people with no artistic literacy or skill produce what they think of as art.

Visual art and literature are windows to the soul, and normally only a certain type of person goes through the effort to open that window for us. Here, and in Youtuber books, you can see inside a completely different type of person. And their soul looks like waifus and cowboys.

[–] sappho@hexbear.net 11 points 11 months ago

I'm always like "Does that make sense?" after I go on for more than a couple sentences and need verbal affirmation that I'm not being silly/confusing

[–] sappho@hexbear.net 3 points 1 year ago* (last edited 1 year ago)

Options I've seen that are best for not compromising fit:

  • loose crochet masks

  • jeweled/sequined meshes that hang down over the mask

  • single chain with beads or jewels attaching to the straps and lying across the nose bridge

  • sheer chiffon fabric masks, sometimes with embroidery - some versions sold as UV protection/sun masks

  • rub-on transfer stickers - people say these don't compromise the electrostatic filtration, unlike other decorations, but I can't verify

[–] sappho@hexbear.net 8 points 1 year ago

Ooblets. It is the game equivalent of a warm hug. Charming, polished, anti-capitalist.

[–] sappho@hexbear.net 9 points 1 year ago (2 children)

I don't know about Temu but I use AliExpress frequently in lieu of getting the same item from a reseller on Amazon. Over the years I've had a couple of things just not show up ever, but that's rare - most of the time everything goes as expected. I tend to pick items that have photos from reviewers, and I don't buy stuff that goes into my mouth/otherwise enters my body.

 

archive link

Over three days on Zoom, the course taught the ritual that forms the basis of the programme. Every time you experience a symptom or negative thought, you say the word "stop", make a choice to avoid these symptoms and then do a positive visualisation of a time you felt well.

You do this while walking around a piece of paper printed with symbols - a ritual the BBC was told to do as many as 50 times a day.

This costs £1000. Their target market is people who are often far too sick to work, and who have extreme difficulty accessing disability benefits due to the politicized nature of long covid.

In some cases the Lightning Process has encouraged participants to increase their activity levels without medical supervision, against official advice - which could make some more unwell, according to NHS guidelines.

A large proportion of people with long covid, and many of the most severely affected, have ME/CFS, which is a disorder of cellular energy production. People with ME/CFS deteriorate with overexertion, and for most this is irreversible.

The only way to manage this and prevent ongoing decline is pacing, which refers to a practice of monitoring your body for symptoms and restricting activity before it becomes too much. This is exceptionally difficult to practice from a psychological standpoint. It's also the exact opposite of what this process programs people to do.

High quality article on long covid fatigue here for those interested - archive link

The coach on the course stressed the importance of avoiding negative thoughts and words like "pain" and "fatigue", claiming using them can continue symptoms.

When we put these specific claims to Dr Parker [founder of this program], he said our questions seemed to be "informed solely by the rumours and misinformation" circulated by what he called "anti-recovery activists".

I have noticed that people in positions of power who push psychological therapies for neglected physical diseases like ME/CFS often use language like this - they speak of "rabid advocates" who "attack them." In general these types maintain that these patients, who almost without exception are not able to access any medical care for their illness, simply "don't want to get better" because of "secondary gains" (e.g attention, disability benefits) of being sick.

[–] sappho@hexbear.net 3 points 1 year ago

I just use bookmarks. It's not the intended use maybe but it works great. Make a new subfolder and fill it up. It's convenient because it's only one button press while browsing the store, then you have a nice little list to look over and go back to your favorites. You can do stuff like select multiple entries and open them all in new tabs.

[–] sappho@hexbear.net 24 points 1 year ago

And for every one set of parents that is willing to believe their kids over the doctors' dismissal, there are - let's say - five more sets who have caved under the pressure and are busy gaslighting their children and making them sicker. Five more kids with lifelong medical trauma, chronic illness, and broken trust in the people who are supposed to protect them.

[–] sappho@hexbear.net 7 points 1 year ago

The Forest for sure, assuming that magical deep rest works even on my ME/CFS. Can't do any of the others without my health anyway

If I wasn't sick, though, I'd pick the shop. For stress relief sometimes I enjoy making massive wishlists of items I never actually buy, and this is like the upgraded version of that. Just seems like it'd be fun to wander and marvel and gather and choose... Plus it's the one that is most likely to be helpful to your outside life and other people you care about.

[–] sappho@hexbear.net 37 points 1 year ago (1 children)

I feel this is the first of many laws like this. I haven't felt this deeply crushed, hopeless, and afraid for a very long time. It's hard to keep going when your life is so small and everyone in power is bent on making it even smaller. I don't know how I will do it, and sometimes I wish I wouldn't keep trying.

[–] sappho@hexbear.net 11 points 1 year ago

It's truly strange. Hard to believe sometimes that it's 2024 and I'm bedbound from the plague and looking into bloodletting

[–] sappho@hexbear.net 8 points 1 year ago (2 children)

There's a weird thing that some people with LC have where large blood draws lead to symptom relief for hours/days/weeks. Probably something something microclots or inflammatory something being removed temporarily, or maybe the body's response to injury...? No one knows, we're all just speculating. But it happened to me personally after a big blood test and then I was seriously looking into donating blood regularly, or, alternatively, nurturing a crop of medicinal leeches at home.

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