this post was submitted on 27 Sep 2025
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I would settle for it being seen as okay to vary your own dose. I'm on quite a high dose, and very much need it. But there are some situations (on holiday and just having a lazy poolside day) where I could take less. But despite being up with various doctors it doesn't seem like an option to them.
Fortunately, I've ended up with some different doses because of the meds shortage (getting 2 packs of 20mg instead of 1 pack of 40mg) which let's me do it myself, but seems crazy how little flexibility there is for a dose level that was entirely decided by me trying them and saying which one worked best.