FundMECFSResearch

Researchers at the University of Edinburgh analysed NHS records from 62 million people to come up with the best estimate yet of the prevalence of ME, also known as chronic fatigue syndrome (CFS).

They concluded that 404,000 people are living with the illness, a figure that is two thirds higher than previously thought, and many are being “completely overlooked”.

Professor Chris Ponting, from the University of Edinburgh’s Institute of Genetics and Cancer, the study author, said: “The NHS data shows that getting a diagnosis of ME/CFS in England is a lottery, depending on where you live and your ethnicity. The data backs up what many people with ME/CFS say: that they feel invisible and ignored.”

cross-posted from: https://mander.xyz/post/28241160

https://theconversation.com/humans-are-8-virus-how-the-ancient-viral-dna-in-your-genome-plays-a-role-in-human-disease-and-development-192322

(this is a sarcastic post meant to highlight the absurdity of some of the “greater good” rhetoric we’ve been hearing, especially around leaving vulnerable populations like disabled people behind in case of revolution, basically accelerationism)

President Donald Trump’s firings at the Department of Health and Human Services included the entire office that sets federal poverty guidelines, which determine whether tens of millions of Americans are eligible for health programs such as Medicaid, food assistance, child care, and other services, former staff said.

Am I the only one that finds it weird that in English: "your disability got worse" and "your ability got worse" mean the same thing even though the words disability and ability effectively means the opposite thing, ie. Are antonyms.

cross-posted from: https://lemm.ee/post/60715570

cross-posted from: https://hackertalks.com/post/8713785

The instances being used are

• lemmy.doesnotexist.club
• chinese.lol

Here is an example of the coordinated downvoting https://hackertalks.com/post/8692093

Of course its a controversial user who got someone angry enough to automated downvoting @DonaldJMusk@lemmy.today

But you can see every post they make gets 53ish downvotes from these two instances, plus some organic ones after a few hours.

Current downvoting Accounts

bot-list

LightIsland@chinese.lol MagnificentRow@chinese.lol FondKnowledge@chinese.lol SillyTowel95@chinese.lol HelplessDear@chinese.lol SomberBrain@chinese.lol InexperiencedCloset@chinese.lol NecessaryPerson11@chinese.lol ClosedEmployment@chinese.lol CoarseHair420@chinese.lol BurlyChampionship49@chinese.lol ZigzagNatural@chinese.lol QuestionableDirt@chinese.lol ProudDeparture@lemmy.doesnotexist.club JoyousDouble@chinese.lol UnitedPatience@chinese.lol MajesticArea@lemmy.doesnotexist.club SinfulConference@chinese.lol MoralDivide96@chinese.lol LeadingCarry65@chinese.lol FrillyOpinion38@lemmy.doesnotexist.club LimitedDiscount49@lemmy.doesnotexist.club ForkedScreen@chinese.lol MediumChemistry13@chinese.lol xXxLawfulGrassxXx@lemmy.doesnotexist.club VisibleSentence@chinese.lol AcidicLawyer90@lemmy.doesnotexist.club PriceySink14@lemmy.doesnotexist.club ExcellentBeach@chinese.lol VivaciousNews@lemmy.doesnotexist.club LankyIndependent32@lemmy.doesnotexist.club SpeedyFault@chinese.lol ConcreteHall89@lemmy.doesnotexist.club WorthyPoint12@lemmy.doesnotexist.club SurprisedAdult99@chinese.lol FlashyCrack@lemmy.doesnotexist.club MasculineBeing@chinese.lol RichWeird@lemmy.doesnotexist.club DryCash97@lemmy.doesnotexist.club AuthorizedChair@chinese.lol SlimKiss@lemmy.doesnotexist.club AromaticRoof78@lemmy.doesnotexist.club BewitchedInterview@lemmy.doesnotexist.club ImaginaryDraw@lemmy.doesnotexist.club PertinentGround@chinese.lol SinfulAssumption@lemmy.doesnotexist.club AwkwardAnybody30@lemmy.doesnotexist.club UnwillingRestaurant@lemmy.doesnotexist.club InsubstantialOven@lemmy.doesnotexist.club

A individual user airing their personal biases and manipulating lemmy isn't good for the community, regardless of how you feel about their target. This is a really bad thing (tm)

Hundreds of thousands of seriously ill and disabled people will become “invisible” and cut adrift from local support services as a result of the government’s £5bn programme of disability benefit cuts, experts have warned.

Claimants who do not qualify for personal independence payment (Pip) or incapacity benefits would lose a “marker of need” with local councils and NHS bodies, making it “nearly impossible” for them to access help, said the consultancy Policy in Practice.

This would “effectively erase some of the most vulnerable people” from the system – including those with life-limiting illnesses including cancer, multiple sclerosis and lung conditions – while making it harder for care services to deliver preventive support

More than 230,000 disabled people will lose access to Pip and the incapacity element of universal credit as a result of the changes, losing at least £8,100 a year, Policy in Practice estimates in a briefing. Nearly 600,000 more who do not claim universal credit will lose or not qualify in future for Pip.

On top of the direct financial hit, disabled people will struggle for visibility in local care systems that use disability benefit awards to deploy support and protection, from housing and council tax relief to debt enforcement safeguards.

Loss of disability benefits means they will lose priority status on council housing waiting lists and will be deprived of priority status in homelessness assessments, leaving them at “greater risk of prolonged homelessness”, the briefing says.